COLUMBUS, Ohio — A new study from researchers at Ohio State shows that individuals with intellectual or developmental disabilities face significant barriers in receiving organ transplants, despite existing anti-discrimination legislation.

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Researchers Brittany Hand and Austin Schenk, both associate professors at Ohio State, focused their study specifically on kidney transplants. Their findings reveal that patients with disabilities were significantly less likely to be evaluated for a transplant in the first place. Furthermore, among those who were evaluated, patients with disabilities were nearly 40% less likely to ultimately receive a kidney transplant.

Currently, 40 states, including Ohio, have enacted laws that prohibit discrimination based on disability within the organ transplant process. However, the study found no evidence that these legal protections have reduced the disparity in care.

Gary Tonks, a disability advocate with the Arc of Ohio, noted that the study reflects long-standing concerns within the community, emphasizing that a diagnosis or label should not determine access to medical procedures.

According to Schenk, who also serves as a transplant surgeon, navigating the healthcare system to be placed on an organ waitlist is an extensive and complex process, which can make discrimination difficult to recognize and document. He stressed the importance of catering healthcare processes to the specific needs of each patient group.

Hand stated that the research highlights critical points in the care pipeline where patients fall through the cracks. To address these gaps, researchers are calling for increased transparency, stronger oversight, and improved data tracking across the transplant process to ensure all patients receive an equal chance.

Disability advocates hope the study will raise awareness and prompt lawmakers to consider strengthening existing anti-discrimination laws.

Source: NBC4 Columbus — Original report

Wararka Af-Soomaaliga

Ohio State: Dadka Baahiyaha Gaarka Ah Qaba Oo Laga Takooro Tallaalidda Xubnaha

COLUMBUS, Ohio — Daraasad cusub oo ka soo baxday cilmi-baarayaal ka tirsan Jaamacadda Ohio State ayaa muujisay in dadka qaba naqfiyada ama baahiyaha gaarka ah ee garaadka iyo horumarka ay la kulmaan caqabado waaweyn oo ku aadan helidda tallaalidda xubnaha bini’aadanka, inkastoo ay jiraan sharciyo ka hortagaya takooridda.

Cilmi-baarayaasha Brittany Hand iyo Austin Schenk, oo labaduba ah borofasoor ku xigeenno ka tirsan Jaamacadda Ohio State, ayaa cilmi-baaristooda diiradda ku saaray tallaalidda kelyaha. Natiijooyinka ayaa muujinaya in bukaannada qaba baahiyaha gaarka ah ay aad uga fursad yar yihiin in marka horeba baaritaan lagu sameeyo si xubin loogu tallaalo. Sidoo kale, bukaannada baaritaanka lagu sameeyay dhexdooda, kuwa baahiyaha gaarka ah qaba ayaa dhawaan 40% ka fursad yaraa in ay ugu dambeyntii helaan kelyaha la tallaalo.

Hadda, 40 gobol oo uu ku jiro gobolka Ohio ayaa ansixiyay sharciyo ka reebaya takooridda ku basada baahiyaha gaarka ah ee nidaamka tallaalidda xubnaha. Hayeeshee, daraasadda ayaa ogaatay in aysan jirin wax caddayn ah oo muujinaya in sharciyadaas ay wax ka baddaleen farqiga daryeelka ee ka jira goobaha caafimaadka.

Gary Tonks, oo ah u doode ka tirsan ururka Arc of Ohio, ayaa sheegay in daraasaddu ay xaqiijinayso arrimo walaac lahaa oo muddo dheer ka jiray bulshada dhexdeeda. Wuxuu xusay in calaamadda ama tilmaanta cudurka ee qofka lagu shaabadeeyo aysan ahayn in ay go’aamiso helidda adeegyada caafimaadka, wuxuuna tilmaamay in taasi ay la mid tahay takooridda ku basada diinta ama midabka maqaarka.

Austin Schenk, oo sidoo kale ah dhakhtar qalliinka tallaalidda xubnaha ah, ayaa tilmaamay in nidaamka looga mid noqdo liiska sugitaanka xubnaha uu yahay mid ballaaran oo adag, taas oo keeni karta in takooridda ay adkaato in la garto ama la dokumentiyeeyo. Wuxuu muujiyay in koox kasta oo bukaannada ka mid ah ay leeyihiin baahiyo kala duwan, sidaas darteedna ay tahay in nidaamka daryeelka uu ka jawaabo baahiyahaas muhiimka ah.

Brittany Hand ayaa iyadana sheegtay in cilmi-baaristu ay tilmaamayso qodobbo muhiim ah oo ku jira nidaamka daryeelka oo ay bukaannadu ka lumaan. Cilmi-baarayaasha ayaa ku baaqaya in la kordhiyo hufnaanta, xakameynta, iyo dabagalka macluumaadka si loo varmeyso in dhammaan bukaannada ay helaan fursad la mid ah tan kuwa kale, iyadoo u doodayaasha xuquuqda dadka baahiyaha gaarka ah qabana ay rajaynayaan in daraasaddu ay ku riixdo sharci-dejiyayaasha inay xoojiyaan sharciyada jira.

Xigasho: NBC4 Columbus